Documenting Observations of Daily Living for Chronic Health Conditions

Опубликовано 17 августа 2016, 20:53

Improvements in modern healthcare have allowed many formerly fatal conditions to become survivable but chronic. At the same time, new technologies enable the movement of care away from clinics and into homes and schools. In this talk, I will use my research in technologies for chronic care across in two domains, autism and premature infancy, to illustrate how ubiquitous and collaborative computing systems and applications may enable new forms of patient care and empowerment. In particular, I will describe a vision for using Observations of Daily Living (ODLs) to diagnose and monitor the health of children both in the short-term and over a lifetime. The combination of remote sensing and record-keeping technologies with the infrastructure of Personal Health Records (PHR) and Electronic Medical Records (EMR) has the potentially to improve health outcomes for children with chronic conditions. At the same time, these new technologies raise questions about the collection of data in terms of both usability and usefulness of these systems as well as concerns around information privacy and surveillance.